Where is data held, and how does the application process work? What laws and regulations apply, and where can support and assistance be obtained? Dataguiden.se provides practical guidance on using register and health data in research.
From the start, a research project needs a thorough plan for data use, which includes legal basis, ethical review and secrecy. Find information on everything from dialogue with data holders and FAIR principles to necessary documentation and registration of studies.
Identifying data sources is an important part of the research process. Find information about different types of data held by government agencies, universities, municipalities and regions, as well as in Nordic databases.
Each data holder has its own process for disclosing data, which means ordering procedures may vary. Here is an overview of the process and which details often are requested.
Research is regulated by laws, conventions and ethical principles that govern how data may be handled. Find information about key regulations and support available to help comply with legal requirements.
Publishing results and sharing research data enhances the transparency and quality of research – and makes it possible to reuse data in new research. Find information about how this works.
Researchers and experts share experiences, insights and ideas about research using registry and health data – from Nordic health puzzles to dog registries and the importance of collaboration.
Here you will find guidance and information on research using register and health data. The content will continue to be developed over time.
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Applications are now being accepted for the Swedish Interdisciplinary Graduate School in register-based Research (SINGS). The program is aimed at doctoral students and researchers working with registry data in fields such as epidemiology, public health, and the social sciences.
The conference aims to provide valuable insights into quality registries for those working in academia, industry, public agencies or the healthcare sector, as well as for patient representatives.
Dataguiden provides guidance and information for researchers working with register and health data.
From 2026, the Swedish Research Council will update their general grant conditions with more explicit criteria for data management according to FAIR principles and for open access to research data.
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