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Dataguiden, Vetenskapsrådet, startpage
Dataguiden, Vetenskapsrådet, startpage
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Inspiration and experiences

Researchers and experts share their insights on how registry and health data can be used in research. Read, for example, about how Nordic data contributes to solving health puzzles, how dog registers are used in health research, or why collaboration can be an important key in working with register data. The interviews are independent of the Data Guide's knowledge support on the research data cycle and reflect the experiences and perspectives of the interviewees.

  • Collaboration is key to good and relevant register-based research

    Johan Askling at Karolinska Institutet has extensive experience of both Swedish and Nordic register-based studies. He emphasises that successful register-based research requires strong collaboration.

  • Pitfalls and best practices in extracting data from multiple sources

    Research that requires register data from multiple sources can be a long and time-consuming process. Jonas Björk, Professor of Epidemiology at Lund University, has experience in compiling register data from multiple sources − and knows what can help facilitate the process.

  • The epidemiologist using dog registries in health research

    Epidemiologist Tove Fall and her colleagues were the first in the world to link dog registries with health data on dog owners. She knows just how unique Sweden's public agency registries are – and how the personal identity numbers open up for more unexpected data sources.

  • Registry data for research: rules, fees and misconceptions

    Karin Björling is a coordinator at Region Dalarna and handles around 50 applications for register data each year – nearly all of which are approved. Experienced researchers are often well versed in the regulations, but among younger and more inexperienced researchers, there are various misconceptions.

  • A gateway to Region Västra Götaland’s data

    Ulrika Frithiofsson is head of the Centre of Registers Västra Götaland, which receives around 350 applications for the disclosure of register data every year. Almost all applications result in researchers eventually obtaining the data, but the process is not always straightforward.

  • Nordic data to solve health mysteries

    Epidemiologist Unnur Valdimarsdóttir works both in Iceland and Sweden. She uses Nordic registry and health data to study links between mental and physical ill health.

  • SCAPIS - One of Sweden's Largest Sources of Health Data for Research

    The SCAPIS study, with 30,000 participants, has become one of the major providers of health data to researchers in Sweden. Project Coordinator Louise Rundqvist is preparing for even greater interest once the first major follow-up, SCAPIS 2, is completed.

  • A centralised access point for health data in the Stockholm Region

    The Centre for Health Data acts as ‘an extension of the researcher’, helping facilitate access to Region Stockholm's unique health data,” explains Heléne Spjuth. Recent developments in AI have led to an increase in the number of complex requests – which places greater demands on coordination.

  • Swedish registers offer unique opportunities for epidemiological research

    “It is both enjoyable and rewarding to conduct research in a field in which Sweden is a world leader” says epidemiology professor Jonas F. Ludvigsson. The pandemic brought him to public attention beyond the research community, but in his day-to-day work, his research focuses primarily on paediatric conditions, pregnancy, and gastrointestinal diseases.